PPI Workshops back by Popular Demand

A series of patient and public involvement (PPI) workshops

for clinical researchers is back by popular demand.

 The workshops, which are open to researchers working in UCL Partners partnership organisations, are practical and the aim is to build up researchers’ skills effectively involving lay people in the research process from setting research priorities to designing protocols. Workshops will run during February and March 2015 and are graded ‘beginners’ and ‘experienced’. Topics include introduction to PPI, filling in grant forms and the role of the lay person on steering groups and committees. Locations are across central London including UCL, the Royal London, Queen Mary University London and Moorfields.

Please click on this link for further information:

PPI Workshops for Clinical Researchers

An Experience of Breast Cancer

Anise Bullimore recently underwent treatment for breast cancer. Over the past year Anise has been sharing her experiences online but also running sessions with our nursing and radiotherapy students (please see video presentations below).

Anise said of her experiences of working with the School of Health Sciences:

‘It’s been a really positive experience. I’ve been able to make sense of the treatment and cancer and aftermath by creating presentations which has been really valuable. I’ve met some wonderful students and SHS staff and feel that I’ve been able to make a difference to how some people view cancer or understand patients. I’ve also had the chance to be involved a little in your courses and learning spaces which has helped me to understand teaching at City more. On top of that, during an extraordinarily stressful working year I’ve been able to do something that I’ve felt I was good at which helped me to feel confident, develop my skills and do something good at work.’

On behalf of the School of Health ‘User and Carer Engagement’ community we would like to thank Anise for sharing her experiences with our staff and students and presenting them with the invaluable insight of a patient’s journey down the road of cancer treatment. The impact Anise’s sessions have had can clearly be seen through the student responses to her rehabilitation talk:

http://www.flickr.com/photos/myrtock/sets/72157636902394906/

During the course of Anise’s treatment she gathered a number of artifacts – writing, videos and pictures. Anise has kindly agreed we can share this material with you as they may be of use to your students in the future.

Googledrive artifacts available via this link https://drive.google.com/folderview?id=0BxhVBUjKRTTKWC03VFZFUnZhZkk&usp=drive_web : •

  • My Year on the Sofa – photobook of Anise’s treatment including photos, art therapy images and scans (powerpoint)
  • Wordle of qualities that make a good cancer nurse by nursing students (jpg)
  • Nursing session talk (powerpoint)
  • Rehabilitation session talk (powerpoint)
  • Art therapy experience writing (Word)
  • Radiotherapy experience writing (Word)
  • After cancer experience writing •(Word)
  • Family and friends experience writing (Word)
  • Harvey Survivorship article – excellent article about psychological experience after cancer treatment • Impact on friends and family writing (Word)

Videos available online:

  • My Body of Work, TedX talk (13 mins):

  • An Experience of Breast Cancer Treatment, nursing session talk video (52 mins):

 

New Online Resources

Here are two online resources which you might useful:

This is available on the Higer Education Academy website.  A network of people with a shared interest in patient & public involvement in higher education, who aim to develop a critical alliance of people with lived experiences, students and academics for the purpose of enhancing improving practitioner education, patient experience and associated research in health and social care.

The Royal College of Psychiatrists

Has published online resouces regarding involving carers in forensic mental health settings.  Including video presentations from their recent conference on: What is Carer Involvement and What makes it difficult to involve carers? This workshop created a place to pool good practice in involving carers into Forensic Services. Importantly it became a trouble-shooting space to explore the challenges in involving carers in Forensic Services and the Quality Network.

These links can also be found under resources.