City University London Reading List Online
Please click on the link Library Resources to be taken to the City University recommended reading list for carer involvement and community engagement.
Involvement in Health Care Practice
Council of Healthcare Science in Higher Education: Patient and Public Involvement: Discussion Guidance :
Crawford, M. J., Aldridge, T., Bhui, K., Manley, C., Weaver, T., Tyrer, P., & Fulop, N. (2003). User involvement in the planning and delivery of mental health services: a cross-sectional survey of service users and providers. Acta Psychiatric Scand, 107, 410-414.
Crawford, M. J., & Rutter, D. (2004). Are the views of members of mental health user groups representative of those of ‘ordinary’ patients? A cross-sectional survey of service users and providers. Journal of Mental Health, 13(6), 561-568.
Crawford, M. J., Rutter, D., Manley, C., Weaver, T., Bhui, K., Fulop, N., & Tyrer, P. (2002). Systematic review of involving patients in the planning and development of health care. BMJ, 325(1263).
Farrell C. (2004) Patient and Public Involvement: The Evidence for Policy Implementation. Department of Health, Leeds.
Fudge, N. & Wolfe, C., & McKevitt, C. (2008) Assessing the promise of user involvement in health service development: ethnographic study. BMJ, doi:10.1136/bmj.39456.552257.BE
Griffiths, C. Foster, G., Ramsay, J., Eldridge S. & Taylor, S. (2007) How effective are expert patient (lay led) education programmes for chronic disease? BMJ 334:1254.
Hopton, J. & Nolan, P. (2000) Involving users in mental health services. Mental Health Practice, 6, 7: 14-18.
NICE (2008) Public health guidance 9: Community engagement to improve health. National Institute for Health and Clinical Excellence. www.nice.org.uk/PH009
Simpson, E. L., & House, A. O. (2002). Involving users in the delivery and evaluation of mental health services: a systematic review. BMJ, 325(1265), 1-5.
Ziebland, S. & Herxheimer, A. (2008) How patients’ experiences contribute to decision making:illustrations from DIPEx (personal experiences of health and illness). Journal of Nursing Management, 16, 433–439.
Involvement in Health Education
Patient Involvement in Health Professional Education: A Bibliography 1975 – June 2012
Division of Health Care Communication, The University of British Columbia
User involvement in learning and teaching about mental health: A reading list
http://www.mhhe.heacademy.ac.uk/links/user-and-carer-involvement-reading-list/
Involvement in Health Research
Boote J., Barber, R. & Cooper, C. (2006) Principles and indicators of successful consumer involvement in NHS research: Results of a Delphi study and subgroup analysis. Health Policy, 75, 280–297.
Frankham, J. (2009) Partnership Research: A review of approaches and challenges in conducting research in partnership with service users. ESRC, National Centre for Research Methods. http://eprints.ncrm.ac.uk/778/ *** Excellent overview; good references
Morrow, E. Boaz, A., Brearley, S. & Ross, F. (2012) Handbook of Service User Involvement in Nursing and Healthcare Research. Wiley-Blackwell, Chichester.
SDO Briefing Paper (2006 ) Involving service users in nursing, midwifery and health visiting research. NHS Service Delivery and Organisation (SDO) Research and Development Programme.
Staley, K. (2009) Exploring Impact: Public involvement in NHS, public health and social care research. INVOLVE, Eastleigh.
***Useful collation of evidence and case studies demonstrating impact.
Sweeny, A., Beresford, P., Faulkner, A., Nettle, M. & Rose, D. (Eds) (2009) This is Survivor Research. PCCS Books, Ross-on-Wye.
Wallcraft, J., Scrank, B. & Amering, M. (2009) Handbook of Service User Involvement in Mental Health Research. Wiley-Blackwell, Chichester.
Morrow, E. Boaz, A., Brearley, S. & Ross, F. (2012) Handbook of Service User Involvement in Nursing and Healthcare Research. Wiley-Blackwell, Chichester.
Sweeny, A., Beresford, P., Faulkner, A., Nettle, M. & Rose, D. (Eds) (2009) This is Survivor Research. PCCS Books, Ross-on-Wye.
Wallcraft, J., Scrank, B. & Amering, M. (2009) Handbook of Service User Involvement in Mental Health Research. Wiley-Blackwell, Chichester.