Principles and Standards for Public Involvement in Research (INVOLVE)
INVOLVE has recently completed a report reviewing work that has already been done on principles and standards for public involvement in research. The review provides an overview of how others have discussed and defined principles and standards for public involvement.
http://www.invo.org.uk/about-involve/current-work/standards-for-public-involvement-in-research/
Public Involvement Impact Assessment Framework (PiiAF)
A Framework and guidance on assessing the impact of public involvement in research.
A useful calculator for researchers who want to involve patients in their study:
Useful method for service users to record their involvement in research and other activities:
Working collaboratively with service users and carers in mental health nursing research (Alan Simpson):
Frankham, J. (2009) Partnership Research:
A review of approaches and challenges in conducting research in partnership with service users. ESRC, National Centre for Research Methods. http://eprints.ncrm.ac.uk/778/ *** Excellent overview; good references
INVOLVE: excellent online resources; order or download for free:
http://www.invo.org.uk/
A national advisory group, funded by the National Institute for Health Research (NIHR).
- To support and promote active public involvement in NHS, public health and social care research
Staley, K. (2009) Exploring Impact: Public involvement in NHS, public health and social care research. INVOLVE, Eastleigh.
- Useful collation of evidence and case studies demonstrating impact.
http://www.twocanassociates.co.uk/perch/resources/files/Involve_Exploring_Impactfinal28_10_09(3).pdf
Staley, K. (2013) A series of case studies illustrating the impact of service user and carer involvement on research. MHRN, London.
http://www.mhrn.info/data/files/NEWS/MHRN_CaseStudiesAugust_2013.pdf
Brief Guide to Involving Mental Health Service Users in Research. Louise Morgan (2006) Service User Research Group for England (SURGE) UK Mental Health Research Network
Good practice guidance for involving carers, family members and close friends of service users in research. Julie Repper, Alan Simpson & Gill Grimshaw (2011) NIHR Mental Health Research Network.
Morrow, E., Boaz, A., Brearley, S., Ross, F.M. (2011), “Handbook of service user involvement in nursing and healthcare research“
Wiley-Blackwell, Chichester, UK. [SYNOPSIS: This book fills an important niche in the market providing practical expert advice on service user (patients, carers and the public) involvement in nursing and healthcare research. An invaluable guide for anyone working or involved in nursing and healthcare research, this book provides a step-by-step guide to the principles and process of involvement, including understanding the rationale for involvement, designing involvement, working with service users, and evaluating what has been achieved.] Website: Available free to download as an e-book to RCN members
Community Engagement in Public Health (NICE 2008)
Community engagement in public health (NICe 2008)