A massive thank you to all the parents who shared their experiences of receiving a positive NBS result in Phase 2 of the study. To view the film, click here.
Rethinking Strategies for Positive Newborn Screening Result Delivery
Just another City, University of London site
It is good to hear from parents who are recipients of these result’s perspective.
Each parent had their suggestions on how they would like the initial result to be delivered to them. As there are nine different programmes, is it possible to have working groups from each of the different specialties to review what is being done down from both professionals and parents point of view ? As you are aware, even within specific specialties, the services are delivered differently depending on whether it is a high or low prevalence area for example Sickle cell