We would like to trial an app that we developed which can be used to support the psychological well-being of people with Parkinson’s. The purpose of the research is to assess if the app is relevant and acceptable to people with Parkinson’s and to test whether the app is potentially effective for improving wellbeing. We would like to do this by conducting a small trial where some people with Parkinson’s will be given access to the app and others will receive care and support as they usually would. We will then compare the two groups on several aspects of wellbeing to see if using the app made a difference.
What’s involved
You’ll need to answer a few questions with someone from our research team to make sure that you are eligible to take part in the trial. If you are eligible to take part, we will then send you a form or questionnaire to complete and then assign you to either an intervention group (those who will receive the app) or the control group (those who will receive the app at the end of the trial). If you are in the intervention group, you can use the app for about 4 weeks after which we will ask you about your experience through questionnaires and an interview. If you are in the control group, you will still need to complete a questionnaire at the end of 4 weeks and after this you will be offered a chance to use the app.
All the questionnaires and interviews can be completed through online surveys or videocall. Recruitment to this study will be open till December 2023.
Who can take part?
To take part you must:
- have a diagnosis of Parkinson’s Disease
- have a need for psychological support (measured through a questionnaire)
- have access to a computer or smartphone or tablet and the internet to help us test the app
Next steps:
If you’re interested in taking part in this project or have any questions about the research, please contact Cathryn [Cathryn.pinto@city.ac.uk].
If you want to read more information about the study, this is the participant information sheet Participant information sheet_trial v3