A massive thank you to all the parents who shared their experiences of receiving a positive NBS result in Phase 2 of the study. To view the film, click here.

We are delighted to invite you to one of our online events this July, showcasing the findings of the ReSPoND study to date.

 Purpose of the events:

• To discuss our findings to date, including how the co-designed interventions can best be implemented in the NHS to benefit parents and families.
• To discuss future research plans based on the findings of the study.

Who the events are open to:

The events are open to parents of children affected by one of the 9 screened conditions currently included in the National NBS Programme and Screening Co-ordinators, Screening Nurse Specialists and Midwives involved in the NBS process.

Location:

The events will be held online via Microsoft Teams.

Dates and Times:

Parents:

Wed 1st July, 10.00 – 11.30 or;

Tues 7th July, 10.00 – 11.30.

Screening Co-ordinators, Screening Nurse Specialists and Midwives:

Mon 13th July, 10.00 – 11.30 or;

Wed 15th July, 10.00 – 11.30.

You will receive a £35 Amazon voucher as a thank you for taking part!

If you would like to join us on one of the sessions, please email pru.holder@city.ac.uk with your preferred date. We very much look forward to seeing you there!

Welcome to the website of the Rethinking Strategies for Positive Newborn Screening Result Delivery (ReSPoND) project.  We are a network of researchers and clinicians who are working together to improve communication of positive (abnormal) newborn bloodspot (the ‘heel prick’) screening results.

This website provides information on the latest ReSPoND research, publications, events, and an interactive blog where researchers can interact and post questions. If you want to receive email updates from the network, including all the latest posts, please enter your email into the subscription box on the left.