About – Aphasia

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What is SUPERB?

SUPERB is a research study.

It aims to find out what helps people adjust and get on with life after stroke and aphasia.


What is Aphasia?

Aphasia is a difficulty with language and communication.  It occurs when the language centres of the brain become damaged.  The most common cause of aphasia is stroke

CLICK HERE to read more about aphasia


Why are we doing this research?

People have emotional needs after stroke and aphasia.

We don’t know enough about these needs
.


Some people may get support from a team of professionals.


Some people may attend stroke groups.

Some people may get visits at home.

We want to know what works best.


What happened in the research project?

56 people with aphasia completed the study. The study was about:

  1.    How people adjust to life after stroke and aphasia

We interviewed people with aphasia and their significant others. They told us about:

  • Their experiences of care
  • Life changes since stroke
  • The personal resources and support systems that help them

 

CLICK HERE to find out what we found – Video 1

 

2.     We compared different packages of care

We wanted to learn what helps people adjust better to life with stroke and aphasia. We compared:

People who got NHS usual care (i.e. local services, groups) with… People who also got peer befriending (i.e. visits from another person with aphasia)


CLICK HERE to find out what we found – Video 2

 

3.     Peer befriending is a new scheme.

We wanted to learn more about it, e.g. how feasible it was, i.e. how practical it was to deliver the scheme

CLICK HERE to find out what we found – Video 3

 

4.     Peer befriending online

Due to COVID we were able to test whether we could deliver peer befriending online between July to October 2020.

CLICK HERE to read the summary

CLICK HERE to read the full report

 

 

[Illustrations on this page are from NIHR]