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What is SUPERB?

SUPERB is a research study.
It aims to find out what helps people adjust and get on with life after stroke and aphasia.

Why are we doing this research?

• People have emotional needs after stroke and aphasia
• We don’t know enough about these needs
• Some people may get support from a team of professionals
• Some people may attend stroke groups
• Some people may get visits at home
• We want to know what works best.

What is Aphasia?

Aphasia is a difficulty with language and communication.  It occurs when the language centres of the brain become damaged.  The most common cause of aphasia is stroke. 

CLICK HERE to read more about aphasia. 

What did the research involve?

SUPERB researchers:

• Visited 56 people with aphasia at home
• Asked questions about how they are feeling and how they are getting on with things.

The study was about:

Adjustment to life after stroke and aphasia

We interviewed people with aphasia and their significant others. They told us about:

• • Their experiences of care
  • Life changes since stroke
  • The personal resources and support systems that help them

CLICK HERE to find out what we found – Video 1

Comparing peer befriending to usual care

We compared different packages of care. We wanted to learn what helps people adjust better to life with stroke and aphasia. We compared:

• • People who got NHS usual care (i.e. local services, groups) with…
  • People who also got peer befriending (i.e. visits from another person with aphasia)

CLICK HERE to find out what we found – Video 2

Peer befriending

Peer befriending is a new scheme.  We wanted to learn more about it, e.g. how feasible it was, i.e. how practical it was to deliver the scheme, and what people thought about it.

CLICK HERE to find out what we found – Video 3

CLICK HERE to read the infographic summary

CLICK HERE to read the full report

 

 

[Illustrations on this page are from NIHR]