Added SUGAR
SUGAR (Service User and Carer Group Advising on Research) is an initiative established to develop collaborative working in mental health nursing research between mental health service users, carers, researchers, and practitioners at City University London. See this recently published article that describes the background of SUGAR; how the group operates; some of the achievements to date; and case studies of how this collaboration influences our research. The article highlights the benefits and possible limitations identified to date by members of SUGAR, outlines future plans, and considers the findings in relation to literature on involvement and empowerment. This article, written by staff and members of SUGAR, is the first venture into collaborative writing of the group and reflects the shared ethos of collaborative working.
New systematic review on patient involvement in research
In this paper, the authors attempt to answer these key questions:
- What are the best ways to identify patient representatives?
- How to engage them in designing and conducting research?
- What are the observed benefits of patient engagement?
- What are the harms and barriers of patient engagement?
See here: http://www.biomedcentral.com/content/pdf/1472-6963-14-89.pdf
Trains, travelscoot and wheelchairs
When Patrick Burke travelled to City University London to talk to nursing students about his experience of living with Multiple Sclerosis (MS), his journey proved more challenging than usual. His story gives an insight into some of the challenges faced – and some positive experiences along the way:
http://www.aid4disabled.com/city-university-and-my-travelscoot/
Facing the future: public engagement is key
There is increasing recognition that societal engagement is critical for universities to thrive in the world beyond 2015. A recent Universities UK report concluded: ‘UK HE currently faces a number of possible futures. The most positive of these would see the increasing integration of institutional interest with the wider public good, placing universities at the heart of economic and social advancement.’ Read more here:
https://beyond2015.acu.ac.uk/submissions/view?id=25&x%5B0%5D=list%3F#.UopM6mQMlIc.twitter